Creation of a pilot pediatric network for personalized medicine in rare pediatric diseases.

The pilot project Únicas, led by Hospital Sant Joan de Déu and the Spanish Federation of Rare Diseases, aims to revolutionize the current and future care model for pediatric rare diseases.

With a grant of €4,719,000 from the NextGenerationEU fund (100% of the total budget), Únicas involves a network of 25 hospitals, research centers, European networks, and companies to address the challenges in diagnosing and treating rare diseases.

Key initiatives include the 4P diagnostic program (precise, personalized, early, and predictive), the 'Discovery' program focusing on new treatments, the 'Córtex' telemedicine program, establishing a Pediatric Institute for Rare Diseases, and the 'La Casa de Sofia' project, providing support and care for patients and families with chronic and complex conditions.